Isaac was diagnosed with Spinal Muscular Atrophy, Type 1, in June of 2014, at four months old. While we knew that Isaac had low muscle tone, we never suspected such a serious diagnosis. We were shocked, sidelined, crushed, devastated. Since his diagnosis, Isaac has been home with us. We have been told that his time is short, and he has already defied the odds. He relies on a ventilator, a feeding tube, and 24 hour care to survive. But at 18 months old, Isaac is thriving. He is bright, happy, and growing. He is learning to use a speech generating eye gaze device to communicate. He loves swinging, playing cars, watching movies, reading stories, and watching his sister sing and dance. We are grateful for every moment with our sweet little guy who fights like a lion every day.
Please stay in touch, as I will continue to post updates new and old. In the meantime, here is a link to all of our previous updates at GoFundMe.