Monday, August 31, 2015

Welcome to ROAR!

Thank you for checking out our new blog, Roar with Isaac!  I decided to start a blog as a way to keep family and friends updated on Isaac's progress.  We will continue to update on, but a blog is a more streamlined way to invite new people to follow along.  I will begin to link our earlier updates to make Roar with Isaac a comprehensive place to read about our journey.

Isaac was diagnosed with Spinal Muscular Atrophy, Type 1, in June of 2014, at four months old. While we knew that Isaac had low muscle tone, we never suspected such a serious diagnosis. We were shocked, sidelined, crushed, devastated.  Since his diagnosis, Isaac has been home with us.  We have been told that his time is short, and he has already defied the odds.  He relies on a ventilator, a feeding tube, and  24 hour care to survive.  But at 18 months old, Isaac is thriving. He is bright, happy, and growing.  He is learning to use a speech generating eye gaze device to communicate.  He loves swinging, playing cars, watching movies, reading stories, and watching his sister sing and dance. We are grateful for every moment with our sweet little guy who fights like a lion every day.

Please stay in touch, as I will continue to post updates new and old. In the meantime, here is a link to all of our previous updates at GoFundMe.


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